Sport for a good cause: Mukomove in May for cystic fibroses

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cystic fibrosis month of May: is CF supply in danger?

bonn (ots)

The month of May is used in Germany as an action period for people with cystic fibrosis. The Federal Association of Mukoviscidosis e.V. deals with the current situation of medical care this year, which faces significant challenges. The inadequate financing of the CF outpatient clinics and the continuously increasing number of adult patients lead to an impending care bottleneck. In order to counteract this trend, the association is intensively involved in health policy work.

A central element of this initiative is the Sport-Machmachktion Mukomove, which is to take place from May 20 to 25, 2025. The association invites everyone interested to participate with their preferred sport in order to draw more attention to the challenges with whom people who suffer from cystic fibrosis are confronted. The goal for this year is to collect a total of 60,000 hours of movement, which indicates the 60th anniversary of the Federal Association.

The current situation is alarming. Experts emphasize that the increasing number of adult patients further exacerbates the structural problems within the healthcare system. Securing CF outpatient clinics is particularly critical, since these facilities are often not considered economically profitable. Due to the high demands on personal care, hospitals are always careful to reduce costs that can endanger these specialized facilities in their existence. In order to maintain the quality of the supply, it is urgently necessary to adjust the treatment services.

The Federal Association of Mukoviscidosis e.V. has been dealing with the disease interests of those affected 60 years ago and has been working on improving medical care in line with the latest scientific knowledge. The CF outpatient clinics that have to have increasingly complex treatment needs due to comorbidities in older patients are important. The association management expresses the need for support from statutory health insurance to ensure high -quality care.

The new government has focused on improving treatment of rare diseases in its coalition agreement. The expansion of digitally networked supply centers could bring a positive change for the cystic fibrosis patients. The cystic fibrosis e.V. sees the need for action and will continue to emphasize lobbying.

In Germany, cystic fibrosis affects over 8,000 people, including children, adolescents and adults. The disease results from a genetic disturbance of the salt and water balance in the body, which leads to severe organ damage, especially in the lungs and the pancreas. Around 150 to 200 new cases are added annually. The persistent challenge for the health system is to meet the specific needs of this patient group and to maintain cost efficiency.