Run against Rett syndrome: Over 900 participants set an example!

Run against Rett syndrome: Over 900 participants set an example!

In an impressive demonstration of solidarity and community spirit, the “Run for Rett” took place in Herrnried, Parsberg, in the Neumarkt district in Upper Palatinate. The event, which drew attention to the urgent needs of research into Rett syndrome, sent a strong message to those affected and their families. Loud BR.de Over 930 running enthusiasts gathered to compete on a nearly one kilometer long route to show their commitment to the cause.

Rett syndrome is a rare developmental disorder that primarily affects girls. With this disease, the body cannot produce an important protein that is essential for the development of nerve cells and brain functions. Over time, those affected lose important skills that they learned in infancy.

A successful run for research

The aim of the event was to raise 30,000 euros for research, a sum that was already reached before the competition. At the end of the day, however, the donation level was almost 75,000 euros. In addition to the rounds completed, which amounted to almost 5,400, numerous pledges of donations from supporters also contributed to this. These impressive numbers reflect the high level of solidarity that the organizers, Robert Harteis, Christian Selch and Stefan Mirbeth, from the “Future through Medical Research” association were able to experience.

The story of little Ella, who has suffered from Rett syndrome since birth, is particularly touching. She is only three years old and cannot walk or communicate verbally. Despite these challenges, she radiates positivity and hope, like on the website runforrett.de is reported. Ella herself has a clear message: she demands support to find her “missing piece of the puzzle” and firmly believes in advances in research.

Research needs support

Research into Rett syndrome is being promoted by numerous associations whose goal is to develop a therapy. The Rett Syndrom Deutschland e.V. association is intensively involved in financing and supporting projects that aim to develop reversible therapies. There are several strategies being explored, including gene replacement and RNA editing, that aim to sustainably improve the lives of those affected. The work is led by expert personalities such as Monica Coenraads, who works together with various laboratories and universities to realize these therapeutic approaches, such as rett-syndrom.at describes.

The positive response to the run gives hope that similar events will be planned in the future, both to raise awareness of Rett syndrome and to raise necessary funds for research. The support of the community makes it clear that we can achieve a lot together.